What have u tried too help your dystonia

[quenslander]

Thank you Ellen,
I have been email back from oxycalm and they said it will be available to Australia and other countrys in 60 days this is what they said,,,We are working to get approval for an OTC label and hope to have product
available in 60 days.

Thank you for responding to this post also beka for the help.

My dystonia reacts to public and stress and after a lot of work with the internal dialog I have redused the anxiety by 50% once I would not even go into a petrol station or shop now you cant keep me away from shops,,, its all about your self belef and what you think,,, change the way you think and you will be amazed....I had 6 months of cognetive therpy which helped quite a bit but cost me $3000 plus I now have tried NLP Neuro Linguistic programing with much better results at 1 % of the price... the conscious mind is the one that makes our dystonia worse,,,I will get a more detailed program through when im not wotking lol,,, take care all11

[kiwi beaver 1]

i tried hypnotism, the music i had for that really did relax me as i fell asleep,
i tried acupuncture, and that helped but was getting too expensive, as you had to keep doing it.
i tried propranalol and that worked marvellously, but you had to keep increasing the dossage, and i did get horrible side affects.
when i weaned of the propranalol i went to a neurologist who diagnosed me with dystonia. that was just a few years ago.
now i just keep busy and have my time where i just potter.
i spend time with family.
One thing i can't do is talk to mum about dystonia, as she is not interested, she just thinks i am still me and dystonia doesn't mean anything.
which is partially true, but she doesn't realize what it is to know it's dystonia and not this unknown thing that i lived with for all my life.
It's a miracle that i found out this disorder because then i found all of you who live with it too, I'm not the only one like i imagined, and you are not all old, i thought only old people were shakey,and i was the odd one out.
some one even asked me as a child if i just saw an old person shake when i was little and copied. What a rediculous thing to say eh! Thank goodness i can't remember who said that.

[quenslander]

Wow that sounds like me... i quess a lot of us r in the same boat young and ignoared by others ..I have the same problem when it comes to parents and not understanding my father still thinks i should be pushing a mower for him gets upset when i tell him it makes me hurt, They just dont want to think there is anything wrong so its easyer for them to not believe and helps them cope,,, makes it much more difficult for us when our family cant even understand... I even have a twin brother that took a lot of time to convince.. he would get cross when I couldnt do the things I did with him all my life..dont let dystonia rule your life and thinking be psoitive and think positive,, the brain is very powerful change thoses thoughts,, say every day every day in every way im getting better and better,, positive inforcement...good luck my friends

[kiwi beaver 1]

mum used to get upset with me because i'd mow the lawns and the mower would stop working, or i'd do it the wrong way.
i would wreck things i tried to do, and my brother used to make these cool models, aeroplanes etc, and my job was dusting the house, well i tried dusting brothers aeroplanes real careful, but my hand being shakey would always break something off it. I'd just stick it back leaning it on another part of the plane and hope he didn't notice, he did, but he was good about it. In the end i said he'd better dust his own things.
anything fiddley that people would get me to do i never seemed to manage.
I do alot of mowing now though and do things alot better now.
but still have my moments.
karen
p.s. i used to fall over alot and get quite muddy, i don't know if it was to do with my leg but mum used to get annoyed at that too.
I have decided when i had kids they could get dirty.

[quenslander]

Thats great karen good to c you r able to mow lawns, Im starting a home servise franchise and mowing lawns is one thing i have on my list to do, I just need to stretch and do alot of this befor mowing or i get real shaking form not stretching, I will eventually just mange the reat of the franchises and hopefully not have to push mowers for a living. thanx for replying to my posts.

Stew

[quenslander]

Thats great karen good to c you r able to mow lawns, Im starting a home servise franchise and mowing lawns is one thing i have on my list to do, I just need to stretch and do alot of this befor mowing or i get real shaking form not stretching, I will eventually just mange the reat of the franchises and hopefully not have to push mowers for a living. thanx for replying to my posts.

Stew

[quenslander]

Thats great karen good to c you r able to mow lawns, Im starting a home servise franchise and mowing lawns is one thing i have on my list to do, I just need to stretch and do alot of this befor mowing or i get real shaking form not stretching, I will eventually just mange the reat of the franchises and hopefully not have to push mowers for a living. thanx for replying to my posts.

Stew