Elaine's Groups
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Fibromyalgia
24 members
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Chronic Pain
64 members
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Gastrointestinal Diseases
33 members
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Chronic Illness
22 members
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Dystonia Neuro Movemen...
268 members
Elaine's Page
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Hi Rebekah,
THANKS for the compliment. : )
The wait for the Rheumatologist dx, is that he was ruling out all other conditions.
So there was a wait for some blood work to come back. I think maybe too....that he wanted to see
how things may or may ...
Elaine,
Why the extended wait for the Fibromyalgia dx? Did they give you the tactile exam?
"If I have 2 hours of movements.....I still have 22 other hours in my day!!"
That's such a healthy attitude! Hopefully, the pt will continue to increase your productive time before your body stops you.
I loved my PTs. I'm so glad to hear you feel encouraged!
Congratulations on finding advocates.
dear elaie-shkey but want to answer.the ot,pt,nurse and speech are sent from hospital.i cat leave hosp bed without movements starting.i pray they figure you out for both of us.love,marie
Marie,
I am sorry that this is happening to you.
An OT (Occupational Therapist) is different than a PT (Physio Therapist)
PT also specialize in different areas. At the Rehab Hospital that I go to, there are (not sure how many in total) at least ...
dear elaine-it was the rn,pt ot and speech therapist and they felt no one had taken the time to accurately dx me.they said they couldnt treat me because it exacerbated my movements.they told the dr i was being left at home to die.i sincerely hope ...
Marie,
The Rehab Hospital where I have my physio, is looking into re diagnosis for me.
They are not asking my Dr. They are telling her.
They only need her consent to move onto the next step in therapy.
Because another "professional" is asking for...
dear elaine -i hope it works for you.my home heath team wrote a strong letter and we got no where.im still wondering if a functioal mri would help with diagnosis and treatment-marie
I posted this same post under another heading...but am posting it here as well in case it might help someone.
HAS ANYONE TRIED PHYSIO THERAPY? ESPECIALLY FOR A "PSYCHOGENIC" DX that they do not agree with?
Elaine
HI
I am feeling happy today. As ...
HI
I am feeling happy today. As I have said about myself, I believe I have Paroxysmal Dystonia, which the Neuros dxed as a "Psychogenic Movement Disorder".
I am not willing to accept that dx.
Today I saw my physio therapist. While I was there I h...
SORRY LONG POST....
EXCERPTS FROM MY MOVEMENT DISORDER REPORT.
I asked for copies of these today from my GP.
The Neuro who was "treating" me....did not write much of a report. So not much to write. He pretty much
relied on his "second opinion" Ne...
BEKA,
Ok, I read it again. Got my husband to read it with me too. lol
What he says he thinks the article means (me too) is that it's more from my muscles than
from my brain?
That touching my arms, electrical shock, exertion will bring on the episo...
Beka,
Yes mostly my right arm. Sometimes my right side of my neck.
My left arm has a mild tremor.
I have been in so much pain and loss of muscle strength that I rested a lot. So had less episodes.
Now I am going to physio, forcing myself to walk...
Muscle relaxers have never helped me much with Generalized.
Now, playing the devils advocate, if you chose DBS as a treatment option YOU would have to be evaluated by a neuro-psychologist.
Yes, you make sense...Elaine.
beka
Profile Information
- In the online health communities I participate in, I'm:
- not really sure where I fit yet
- The online health resource I contribute to most frequently is:
- http://RAD_FASDkids@yahoogroups.com
- This site is:
- a community I manage/moderate
- Another place where I contribute is:
- http://Weight_Loss_Special_Needs_Parents@yahoogroups.com
- Which is:
- a community I manage/moderate
- More about me (my health interests and reasons for joining WEGO Health)
- Mostly to educate myself on various conditions. I'm seeking a diagnosis of my "condition".
Comment Wall (3 comments)
- At 10:11am on November 13, 2009,
Barbara Engle said… 
- At 9:28pm on November 7, 2009,
Amy K said… - Thanks for joining the Fibromyalgia Group Elaine! I am happy to see you made your way there. I look forward to connecting with you here on WEGO Health.
Well wishes,
Amy
- At 8:07am on June 29, 2009,
Vanessa_Rhinesmith said… - Welcome to WEGO Health, Elaine!
What brings you to our growing community of Health Activists? We have many community groups to fit a wide array of interests. I would encourage you to check them out!
I'm also a fan of the WEGO Health blog, which is full of information!
Please let me know if you have any questions about how to get started or if you can't quite find what you're looking for.
Be well,
Vanessa
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