Ellen S's Groups
-
Health Activists And Pub…
32 members
-
Twitter for Health Activ…
16 members
-
Mental Health
53 members
-
Health Bloggers
30 members
-
Health Facebooker
15 members
Ellen S's Discussions
Support group neccesity
From another angle, it's possible that having a support group 'may' encourage physicians to attend and learn more about Dystonia.... Collateral Benefits??!
Replied 1 day ago
Support group neccesity
Lene, I know about not having it in you every day. :) You need a partner or two to trade off with!
Replied Dec 9
Child suffering from I believe "Abdominal Migraines"
Hang in there worriedmom. Okay, have you first visited the helpful site pecanbread.com or read the wonderful book Breaking the Vicious Cycle? Here is the site for the book, filled with wonderful inf…
Replied Dec 8
BioPortfolio News
Loading feed
Welcome to WEGO Health! To visit my blog, click the link under my photo
Latest Activity
Ellen, I am very sorry that I missed this. Unfortunately, I wasn't even a member at the time. Is there a transcript or replay available? I would also like to share the material with others in the various ways that I advocate for the Chronically Ill/…
What an interesting topic, Ellen! I especially liked the part where you mentioned that this sort of research/brain exercise might ward off Alzheimer's.
There are so many proposed "cures" and "prevention techniques" for Alzheimer's but I wonder if t…
December 2009 update -
It's been quite some time since I last updated this story. Several things have been happening, and the story continues...
Beginning around September, the patient was feeling better. She was getting some of her yoga classes i…
Amy, thank you for your thoughtful comments!
Just thinking here - did the station put your interview anywhere online that we can view it?? Great job and congrats!! I had no idea you did this...
Great post Ellen, this brings up a lot of important topics to me!
As a health activist, as well as a person who has some limitations in life due to health conditions, I have found the internet to at times be a lifeline as well as an incredible tool…
From another angle, it's possible that having a support group 'may' encourage physicians to attend and learn more about Dystonia.... Collateral Benefits??!
Lene,
I know about not having it in you every day. :) You need a partner or two to trade off with!
Hang in there worriedmom.
Okay, have you first visited the helpful site pecanbread.com or read the wonderful book Breaking the Vicious Cycle? Here is the site for the book, filled with wonderful information. Elaine Gottschall was a wonderful human…
You might try contacting the local hospital and let them know you are interested in forming a support group. Many of them will offer space, speakers etc if you're willing to donate your efforts to its formation. Some will even offer training/worksho…
Hi Angie,
May I suggest that you pose your question in the Gastrointestinal Diseases, and the Autoimmune Diseases group? Those groups are designed especially for disorders such as Celiac's, so you might have better luck there.
Please let me know i…
Amanda,
I came across this interesting article in Psychology Today - Chronic Personality Problems in Problem Relationships. While it may not specifically address how to live with someone with BPD or give examples of those in this struggle, it does…
Tena,
You are such a blessing! As you know, I am still very interested in LDN therapy for autoimmunity, but finding a physician who can look past Naltrexone's history as a drug for abusers is difficult. Once these trials are completed I am hoping t…
I wonder if you were/are suffering from some type of adrenal or pituitary dysfunction - have you ever had your adrenals checked?
Cortisol rises and falls throughout the day and plays a large part in determining our circadian rhythms. Another adrena…
I had bipolar disorder several years ago and I cured it with light therapy (evening until bedtime) and a high salt diet (isotonic). The light therapy has an obvious connection to the circadian clock – it lengthens daylight. But it took me a while to…
Profile Information
- In the online health communities I participate in, I'm:
- a Librarian (Passionate researcher)
- The online health resource I contribute to most frequently is:
- http://www.wegohealth.com
- This site is:
- a community I manage/moderate, a community I contribute to, my blog
- Another place where I contribute is:
- http://twitter.com/eschnak
- Which is:
- my twitter
- It's:
- a community I contribute to, my profile on another website
- You can also find me at:
- http://illnesstwitters.ning.com/profile/EllenSchnakenberg
- This is:
- a community I manage/moderate, a community I contribute to, my profile on another website
- More about me (my health interests and reasons for joining WEGO Health)
It took me a long time to warm up to the title Health Activist, but I've slowly come around to it. :) Becoming an active part of my own health care team led me to participation and research online, and eventually to WEGO Health!
Migraine attacks have been a part of my life for approximately 30 yrs. I have intractable Migraine with and without auras, which are usually very profound and disabling, as well as Trigeminal Autonomic Cephalgias which include Hemicrania Continua and Chronic Cluster Headache. I also live with Raynaud's, Lupus, Auto-immune Thyroid Disease, Insulin Resistance and a rare movement disorder called Dystonia which complicates my treatment. It's been a long road so, I have experience as a patient of Allopathic, Osteopathic, Chiropractic, Homeopathic and Complementary Medicine practitioners throughout the mid-western United States.
My home is in the country surrounded by the beautiful, picturesque rolling hills of Northeast Missouri where I live with my husband, occasionally my 2 semi-grown children and several pets
Although my health issues have forced me to retire from my jobs as both an equine reproduction manager and emergency dispatcher, I strive to maintain a positive attitude and sense of humor, and choose to use my unique experiences to help educate others as well as myself in our journey toward optimal health for better living.
Favorite Quotes:
"Opportunity is missed by most people because it’s dressed in overalls and looks like work." ~T.Edison
"Well behaved women rarely make history"
"You don't quit fighting a gorilla when you get tired, you quit when the gorilla gets tired."
"If you don't like something, change it. If you can't change it, change your attitude. Don't complain." Maya Angelou
"I will love the light for it shows me the way, yet I will endure the darkness because it shows me the stars." ~Og Mandino
That legal stuff:
The photos I have posted throughout this site are personal. I either hold the copyright, or have used it with permission from someone else who holds the copyright. They are not for use for any reason or by anyone without written permission by the copyright holder. Thank you.
The information provided herein should not be used during any medical emergency or for the diagnosis or treatment of any medical condition. A licensed medical professional should be consulted for diagnosis and treatment of any and all medical conditions. Call 911 for all medical emergencies. Links to other sites are provided for information only -- they do not constitute endorsements of any sites.
Hope is the thing with feathers.....
Ellen S's Videos
Ellen S's Blog
Nighttime urination and the apnea connection.
Loud snoring is one of the hallmark signs of Obstructive Sleep Apnea (OSA). Did you know that nocturia (urinating at night) is comparable in importance as a sign of OSA? More importantly, does your doctor know?
The research details
The link between OSA and nighttime urination was shown about a decade ago, but recently a new retrospective report… Continue
The research details
The link between OSA and nighttime urination was shown about a decade ago, but recently a new retrospective report… Continue
Posted on December 5, 2009 at 12:00pm —
Health Activists and their communities accidentally build brain function
One of the minor reasons I began researching on the internet was because I hoped it would improve my brain function. I felt like I was living the old axiom "If you don't use it, you'll lose it." A recent article has brought to light a study that seems to prove my efforts may not have been in vain.
The Research
TechRepublic reported Tuesday, December 1, 2009 that a small UCLA study… Continue
The Research
TechRepublic reported Tuesday, December 1, 2009 that a small UCLA study… Continue
Posted on December 5, 2009 at 10:30am — 3 Comments
Erectile dysfunction associated with sleep apnea
So, your hubby or significant other shows the signs of Sleep Apnea? Can't get him to the doctor? Maybe you got him to the doctor, know he has apnea, and can't get him to wear his CPAP at night?
Perhaps you should consider showing him this article from the International Journal of Impotence Research: Erectile dysfunction in severe sleep apnea patients and response to CPAP CPAP
Th… Continue
Perhaps you should consider showing him this article from the International Journal of Impotence Research: Erectile dysfunction in severe sleep apnea patients and response to CPAP CPAP
Th… Continue
Posted on December 4, 2009 at 6:00pm —
Flax seed oil may prevent osteoporosis
My story:
Despite a very active, outdoor lifestyle and (relatively) young age, I was diagnosed several years ago with full blown Osteoporosis. Finding it was an accident, but it led to trying several treatments that had side effects which could be serious. I soon learned how to manage it properly with exercise, diet and supplements and for the last couple of years have done fairly well without osteoporosis medication. However, with the intense pain of my autoimmune conditions (Lupus/Sjog… Continue
Despite a very active, outdoor lifestyle and (relatively) young age, I was diagnosed several years ago with full blown Osteoporosis. Finding it was an accident, but it led to trying several treatments that had side effects which could be serious. I soon learned how to manage it properly with exercise, diet and supplements and for the last couple of years have done fairly well without osteoporosis medication. However, with the intense pain of my autoimmune conditions (Lupus/Sjog… Continue
Posted on December 4, 2009 at 3:30pm —
Migraine tips for the holidays
The holidays are such a wonderful time to experience when we feel good, and a nightmare when we are in the middle of a Migraine.
Today I wanted to take a minute out to create an index of some of my past Holiday information, tips and recipes for Migraineurs. Health Activists - feel free to link back to any of these you think might be useful in your groups, or use them to inspire a conversation or post of your own!… Continue
Today I wanted to take a minute out to create an index of some of my past Holiday information, tips and recipes for Migraineurs. Health Activists - feel free to link back to any of these you think might be useful in your groups, or use them to inspire a conversation or post of your own!… Continue
Posted on December 3, 2009 at 1:19pm —
Comment Wall (165 comments)
- At 12:10am on December 8, 2009,
Tamra Scott-Hunt said…
- Glad I could help! :)
- At 2:30pm on November 20, 2009,
Lizzy Holder said…
- Hi Ellen,
Just thought I'd expand my horizons beyond yahoo. Beka has some good sites ere, and I just read and read. Nice to be in such a big group. Was thinking of starting a chat group for the holidays, they sometimes aren't so hot. Any help you can do with that would be great. Seems nobody has chat rooms anymore. Found one at bravenet.com, but can't make it work right.
Take care,
Lizzy
- At 2:00am on November 20, 2009,
Lizzy Holder said…
- Thanks Ellen for the welcome. Yes, we do run into each other at other sites. Do you twitter?
Lizabeth
- At 5:09pm on November 5, 2009,
Barbara Engle said… - I look forward to viewing your links and adding them to my information
Big Hug Barbara
- At 10:16pm on November 1, 2009,
Alicia C. Staley said… - Hi there! I'm looking forward to working with all of you!
© 2009 Created by Marie
