Ellen S's Groups
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Natural Medicine
20 members
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Gastrointestinal Diseases
27 members
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Women's Health
106 members
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Fibromyalgia
14 members
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Sexual Health
39 members
Ellen S's Discussions
Does anyone know how safe this website is ?
Oh Amanda, you are such a dear - I'm afraid my frustration with my own issues may have come across to you completely wrong! I did not take your post as the trivialization of the topic. In fact, I ...
Replied Jul 2
Does anyone know how safe this website is ?
Amanda and all, Unfortunately, physicians are generally not forthcoming with pain control in most instances. If you suffer a terminal illness, pain control is not usually an issue. Post surgery or...
Replied Jun 23
Does anyone know how safe this website is ?
I can't comment about that specific site. I am not familiar with it. However, keeping in mind that there are very good reasons why certain medicines require a prescription, it's not something I wou...
Replied Jun 23
Welcome to WEGO Health! To visit my blog, click the link under my photo
Latest Activity
Twitter Power Tools for Health Activists* at anywhere
July 9, 2009 from 8pm to 9pm
"Twitter Power Tools for Health Activists*" is the second in a series of webinars designed to help you make the most of your Twitter account.
During this 45 minute presentation, we'll give you a guided tour of some of the most useful third party ...
Ellen,
I'm so sorry to read this. My thoughts and prayers are with your friend and her family.
I wish I had more time to blog about this, but since I've had a couple people contact me to ask the mystery's answer, I'll blog later and answer today...
The answer is that she is literally one in a million... she has the human form of Mad Cow ak...
Profile Information
- In the online health communities I participate in, I'm:
- a Librarian (Passionate researcher)
- The online health resource I contribute to most frequently is:
- http://www.wegohealth.com
- This site is:
- a community I manage/moderate
- Another place where I contribute is:
- http://twitter.com/eschnak
- Which is:
- my twitter
- It's:
- a community I contribute to
- You can also find me at:
- http://health.groups.yahoo.com/group/migraine/
- This is:
- a community I contribute to
- More about me (my health interests and reasons for joining WEGO Health)
It took me a long time to warm up to the title Health Activist, but I've slowly come around to it. :) Becoming an active part of my own health care team led me to participation and research online, and eventually to WEGO Health!
Migraine attacks have been a part of my life for approximately 30 yrs. I have intractable Migraine with and without auras, which are usually very profound and disabling, as well as Trigeminal Autonomic Cephalgias which include Hemicrania Continua and Chronic Cluster Headache. I also live with Raynaud's, Lupus, Auto-immune Thyroid Disease, Insulin Resistance and a rare movement disorder called Dystonia which complicates my treatment. It's been a long road so, I have experience as a patient of Allopathic, Osteopathic, Chiropractic, Homeopathic and Complementary Medicine practitioners throughout the mid-western United States.
My home is in the country surrounded by the beautiful, picturesque rolling hills of Northeast Missouri where I live with my husband, occasionally my 2 semi-grown children and several pets
Although my health issues have forced me to retire from my jobs as both an equine reproduction manager and emergency dispatcher, I strive to maintain a positive attitude and sense of humor, and choose to use my unique experiences to help educate others as well as myself in our journey toward optimal health for better living.
Favorite Quotes:
"Opportunity is missed by most people because it’s dressed in overalls and looks like work." ~T.Edison
"Well behaved women rarely make history"
"You don't quit fighting a gorilla when you get tired, you quit when the gorilla gets tired."
"If you don't like something, change it. If you can't change it, change your attitude. Don't complain." Maya Angelou
"I will love the light for it shows me the way, yet I will endure the darkness because it shows me the stars." ~Og Mandino
That legal stuff:
The photos I have posted throughout this site are personal. I either hold the copyright, or have used it with permission from someone else who holds the copyright. They are not for use for any reason or by anyone without written permission by the copyright holder. Thank you.
The information provided herein should not be used during any medical emergency or for the diagnosis or treatment of any medical condition. A licensed medical professional should be consulted for diagnosis and treatment of any and all medical conditions. Call 911 for all medical emergencies. Links to other sites are provided for information only -- they do not constitute endorsements of any sites.
Hope is the thing with feathers.....
Ellen S's Videos
Ellen S's Blog
Aphasia awareness
Do you know that feeling you get when you can't remember the name of an old teacher, or put a name to the face of a person walking toward you? Some people struggle with that feeling with every word they attempt to speak.
For a rare few, Migraine aura can result in the debilitating inability to communicate. Fortunately for Migraineurs, it is usually not permanent unless damage occurs. For others that have suffered stroke or other brain injuries or damage, Aphasia is a new way of life for them an… Continue
For a rare few, Migraine aura can result in the debilitating inability to communicate. Fortunately for Migraineurs, it is usually not permanent unless damage occurs. For others that have suffered stroke or other brain injuries or damage, Aphasia is a new way of life for them an… Continue
Posted on June 30, 2009 at 2:00pm — 2 Comments
Cambia - New Migraine medication is approved
Cambia was approved June 17, 2009 by the FDA for use in the United States for the treatment of Migraine. It does not prevent nor lessen the number of attacks, but is designed to treat one already in progress. Cambia comes as a flavored powder to be mixed with water to form a solution which is drunk by the patient, preferably on an empty stomach.
Drugs.com reports that, "In randomized clinical trials, Cambia was shown to be effective not only in mig… Continue
Drugs.com reports that, "In randomized clinical trials, Cambia was shown to be effective not only in mig… Continue
Posted on June 25, 2009 at 10:00am —
Order your own lab work - a coupon
Lab work does not necessarily mean taking the time out of the week for a doctor's office visit only to hear that you'll need another one for the results. Lab work doesn't necessarily mean huge lab bills either. You have options of which you or your doctor may not be aware.
There are many places you can go online to have your lab work ordered and tested. Many offer physician's consults when the results are in as well. Today, I received a coupon and wanted to share it with you:… Continue
There are many places you can go online to have your lab work ordered and tested. Many offer physician's consults when the results are in as well. Today, I received a coupon and wanted to share it with you:… Continue
Posted on June 25, 2009 at 7:30am —
Your medicine choices - suppositories
Medication can be formulated in many different ways:
*pill
*capsule
*liquid
*sublingual
*drops
*spray
*lozenge
*sucker
*suppository
*cream
*gel
*inhalent
This post is going to talk frankly about suppositories and compounded suppositories.
What is a suppository? A rectal suppository (or 'rectal rocket' some have dubbed them) is a special pill that is placed in the rectum to be absorbed instead of s… Continue
*pill
*capsule
*liquid
*sublingual
*drops
*spray
*lozenge
*sucker
*suppository
*cream
*gel
*inhalent
This post is going to talk frankly about suppositories and compounded suppositories.
What is a suppository? A rectal suppository (or 'rectal rocket' some have dubbed them) is a special pill that is placed in the rectum to be absorbed instead of s… Continue
Posted on June 24, 2009 at 11:00am —
Computers of the world unite to cure disease
Stanford University's bold research project called Folding At Home is your chance to sit back, do nothing, and help them discover the keys to disease, and someday maybe even their cures.
*Alzheimer's Disease
*Parkinson's Disease
*Cancer… Continue
*Alzheimer's Disease
*Parkinson's Disease
*Cancer… Continue
Posted on June 23, 2009 at 5:00pm —
Comment Wall (129 comments)
- At 10:33am on June 28, 2009, FelicityNexus said…
- HI Ellen,
YOur very verry savvay on the compter i am so impressed. I have never had a intrest to work on the compter until the year i think it was 2006 and it was for to research, then i joined i chatroom. I a quesiton , I do not even know what a thread is. I attended the webinar on the twitter event i tried to take notes but i have so much of a congnitive dificulties to know what to do , i have no one here to help me . I had been in a stroke rehab threpepy for 6 months at the begining to learn to cross the midline and now i am in PT to learn proper gait and to learn how to not to fall over ( boy what a jouneney) it is to help with cognitive to . I have had people notice improvements . It has been 4 and half years and it seem i am stuck in a time warp.to explain a closed head injury to any one would take a book to write it .THe pain ect..... and then to get a double wammy of posttrauma dystonia on top of it. oh geesh i am side tracked .. ok i needed to know what was a thread please? lol humor does help, it is hard to keep a false smile at times thoe. thank you Ellen for being my friend.
- At 8:52pm on June 10, 2009, SummerSea2 said…
- Thank you Ellen S. I will keep in touch with this site.
- At 8:40pm on June 3, 2009,
Brooklynn said… - They can SAY all they want: migraines are totally triggered by stress.
Good luck with the transition....I am sure in a few months you will be wondering why you ever thought this was stressful ;)
- At 8:12pm on June 3, 2009,
tortimomma said… - ellen, i did make the webinar today however it was beyond my puter expertise...too tech for me, but will try out some of his suggestions--when i'm feeling better [AND if i can remember--lots of info]. hope you made it...thot i saw your horse display pic.
also, thanks for commenting back reg meds, etc. [sorry that post was so long!]
- At 10:30pm on June 2, 2009,
Angie said… - ellen, im such a goof. i'd overlooked my confirmation email from marie with the gotowebinar link. thats why i was asking howt o connect. thanks for tweeting info back to me. ur a gem.
- At 3:14pm on June 2, 2009,
mothershaffer said… - Sweating is always good, but I also think the yoga makes me focus on myself for an hour and a half...no exceptions...easy to put yourself last and unfortunately, your health can suffer as a result.
BTW, your horse looks like a unicorn! I did a double take of you profile pic! Love horses too, I'm sure riding is very therapeutic.
- At 12:51pm on June 2, 2009, mothershaffer said…
- Hi Ellen, Thanks for introducing yourself. Does sound like you've had a tough go of it...congrats on your achievements.
Bikram Yoga worked great for me because it is taught in a heated room (great for loosening tight joints/muscles) and it does not involve a lot of "downward dogs"...pain from bearing weight on my hands and wrists really prevented me from doing other forms of yoga. Bikram can be really hard at first to get used to (some people feel sick and dizzy) because of the 100+ temperature, but it is worth sticking with it. I'm lucky to be at a point where I don't need any medication to manage my RA symptoms. I think I have to attribute a lot of my success to Bikram yoga.
- At 12:24pm on June 2, 2009, tortimomma said…
- Love the songs, Ellen. Hope to make the webinar for Twitter tomorrow...if doc appt isn't too long. It's follow-up from MRI cerv spine under anesthesia last Fri. I was able to view the CD on my computer yesterday. From past MRIs & doc explanations, it sure looks 'scary'. Don't know what this new doc can offer since I've been told by at least 6 neurosurgeons & orthopedic surg's that I am no candidate for fusion due to severe spasms in my neck muscles. I haven't been able to find a combo of meds to relieve my symptoms for more than 20 yrs now. I've never been tested for DYT1 gene or dopomine deficiency. What should I ask for? This doc is a spine specialist referred by my pain doc [who is at a loss how to treat me now]. I don't have a neurologist now...last one I saw offered 'nothing' except to try & alleviate fibro pain, etc. with Lyrica & Skelaxin...of course, no relief there either. I read that those 2 are contraindicated for ST/CD anyway. So what should I ask for? It's been in the early years that I took Artane, Baclofen, Klonopin, Valium, Oxycodone, Methadone, Morphine, Flexeril, Duragesic patch & on & on it goes. Since I had no definitive relief from those my current pain doc will not re-prescribe any of them. I was taking so many at one time that I couldn't tell if ANYTHING helped or not. Finally last fall I began to d/c all 15 meds I was taking. Worst withdrawal was Klonopin...that Benzo almost killed me...but while I was taking it [until I had to keep increasing doses] helped me more than anything else along with Oxy. Now they won't touch me with Klon or narcotics. I'm presently taking SOMA & Tramadol with Xanax...which doesn't help either. I do receive steroid trigger point injections in my neck about ev month...very little relief there either. I'm just at a loss as to what to ask for. There is not a movement disorder spec in my area & I have no one to drive me elsewhere.
Any suggestions? Thanks, Ellen. Hope you're having a great day.
tortimomma aka Karen
- At 12:50am on June 2, 2009,
Jenn C said… - Hi Ellen, I got your twitter comment but I am so technology retarded so I am learning how to use all of this stuff now lol I am real confused ( sad to say, but true! ) Maybe you can give me some knowledge on what to do! Im LOST = ((
Good to see you on here, and I plan on reading some of your stuff. I been real ill and haven't been on much at all! so I have a lot to catch up on when I get better! I got a serious infection in my foot and have been in bed very sick from the meds I have to take, plus I have to keep my foot elevated, and this is just another not needed illness to add to the many I already do have! Im really down lately, so I get on when I can.....Good to hear from you tho, and sure follow me, but dont get lost with me lol I may get lost.....JK
Have a great day
God Bless
Jenn
- At 4:29pm on May 30, 2009, Brooklynn said…
- Migraines have been quietly present - not as bad as they usually are. I have been pretty good about taking my meds early, getting my botox and decompressing when I feel like my stress level is shooting through the stratosphere.
How are you?
© 2009 Created by Marie
