Hello Everyone~! I am new here and look forward to getting to know everyone to share and support one another with our Chronic Ilnesses. I have Systemic Lupus (leave it to me as only one male in ten thousand are being diagnosed) Due to the Lupus, I...
Welcome Trudy, sorry for late reply, been a bit busy of late. Thanks for sharing a bit about yourself, those all sound like some good discussions to have, feel free to start one up anytime :)
Support is a subject that is different for everyone, don't you think?
Personally, my immediate family and the friends that know about my conditions are very supportive even though they clearly do not understand what's happening. But - I don't sha...
Thanks for replying Angela
Yes, I think it's hard for some people to accept chronic illness, some who have never experienced it cannot understand what's happening. Often they can't fathom why you can't do certain things, because, well, they can. ...
It is very difficult to feel acceptance and support from everyone, even loved ones and coworkers. This is especially true when your condition is not easily visible.
Thanks Ellen for starting this thread, its a great starting point for members. If you have joined our group, please come in and say hi, chronic illness can be a massive strain on people's lives, and impacts on so many of us. I think you would be h...
Unfortunately it's too early to tell on the treatment... Hopefully I'll see some improvement in the next several weeks or so.
I was just wondering if you thought about having all of your new sites as part of your main site or otherwise creating those resources all in one place? If you are interested and need help or help hosting it, let me know!
How have you been otherwise?
BTW I just added The Recovery Room link to my blog :)
What brings you to our growing community of Health Activists? We have many community groups to fit a wide array of interests. I would encourage you to check them out! While we do not currently have a CFS community, we do have a Fibro community or we could always start a CFS group.
Please let me know if you have any questions about how to get started - or if you can't quite find what you're looking for.
More about me (my health interests and reasons for joining WEGO Health)
I have CFS and endometriosis. I have not been able to work for years due to chronic illness. I have created a chronic illness website to provide the information and support I believe is needed by people with a chronic illness. I put out the kind of information I would have liked to have known when I first got sick. I also have a chronic illness support forum on my website.
On my blog I explore the chronic illness experience.