Lilly7's Page
Latest Activity
Here's a bit of info on Pain and Fibromyalgia:
Fibromyalgia is a syndrome that is characterized by a number of different symptoms. However, one of the most dominant fibromyalgia symptoms is definitely pain. More than 3.5 million men and women suffer…
I am getting more confused.
How do you tell the difference between Dystonia pain and Fibro pain?
I keep hearing Dystonia is under dxed and Fibro is over dxed?
Yet both say they have severe pain.
I don't know what is causing what? How does a person…
Thank you so much for your help! I really appreciate you teaching me....I feel like i have just been lifted. Thank you very much....grateful Lilly7
Hello Deanna,
And thanks for keeping it real...I just went to my nuerologist and i just gone fustrated. I am now trying to get with the mayo clinic in hopes that they can help me. I feel sad that it didn't work out for you... I know what you mean wh…
Hello,
Hopefully, I'm correct with what my nuerologist told me that I had myclonus dystonia. I was just diagnosed about a year ago... and I have real bad left chest pain and real bad headaches.. Now my left leg is starting to hurt real bad and i can…
Hi Lilly - How are you ? Welcome to the Forum. Where do you have the pain ?
Think of the following acroynms to help clarify for us your pain..Location, severity, provocation, and more..
Caring for someone with a life threatening illness requires ca…
Hello Lilly:
Welcome to wego health! You've come to a great place to gather information for dystonia. I am one who can relate to your pain. I have cervical dystonia with tremors and with that comes lots of pain to deal with. You are not alone, pleas…
Lilly,
Have you been diagnosed by a Neuroligist? Have they gave you meds for your Dystonia? What type do you have?
Yes, unfortunatley pain is something Dystonia.
I have Generalized which is head to toe. Not fun, changed my life. It affects every a…
Hi Lily,
What kind of Dystonia do you have ? How long have you had symptoms? Do you get Botox shots? What doctors do u see?
Please type a little about your pain and your dystonia. We all have the pain so for sure you are not alone. I have been in be…
Hello, I am new to the site. I would just like to talk to someone that has it as well and can clue me in on the reality of what is happening to my body. Because the pain is overwelming me.
Living with, or caring for someone with Dystonia? Join to share information, resources, and support with others.
Profile Information
- In the online health communities I participate in, I'm:
- not really sure where I fit yet
- More about me (my health interests and reasons for joining WEGO Health)
- To reach out to others that are going through similar health problems like me and just talk about it. I feel isolated right now.
Comment Wall (3 comments)
- At 7:39pm on October 5, 2009,
sisdailey said…
- Hello Lilly:
Great to have you here. You are welcome! Junp right in and get your feet wet. You will find an awesome amount of information here to help.
Sisdailey
- At 12:46am on October 3, 2009,
Lene said…
- Hi Lilly, Nice to have another friend on Wego Dystonia...Jump right in the water is great!! Lene
- At 10:47pm on October 1, 2009,
Deanna said…
- Hello Lilly. Welcome to our support group for Dystonia. What type of Dystonia do you have?
WHY WE HAVE ADS
© 2009 Created by Marie
