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Northrncitylady
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- Northern Shores, MN
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Weight gain
Replied Sep. 23, 2008
Re: What are others taking for depression?
Replied Sep. 23, 2008
Re: What are others taking for depression?
Replied Sep. 23, 2008
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Replying to a very old post.....
Northern City Lady.
Are u in the U.S.? I'm in Canada.
I am in Manitoba where it gets very very cold in the winter. So I'm really housebound for a large part of the year.
My car has been put into storage for now.
I...
Comment Wall (4 comments)
- At 7:00pm on September 21, 2008,
kiwi beaver 1 said… - hi , and thanks for adding me as your friend, it took 38 years for me to be diagnosed with dystonia and think i have essential tremor in both hands. i didn't know anyone for over 38 years that had what i have only here on line. We know a boy who has essential tremor and that's all.
i found it hard and dreaded anyone offering me drinks, i'd need to have it at a table but even then couldn't manage amongst a group of people so stopped drinking in front of others unless it was at bars i'd have a drinks with a straw and someone would always carry it for me to a table.
But this year aged 42 i decided to have a cuppa with the ttennis ladies at our club and all went marvellously well, not one single drop was spilled and noone even noticed.
i owe it to my belief in jesus and he gave me strength to believe in myself.
i coped with tremors by joining in with everything as a kid and loved and was quite good at netball and tennis, and badminton.
i joined swimming club when i was 11 and was never that good at freestyle as my left arm didn't seem to strengthen with that, but i was ok at backstroke and breaststroke. i concentrated on those.
I also got the hang of diving into the pool and even taught my sister, she was an awesome swimmer but couldn't dive in for ages. but that was something she asked me to show her which was very rare ffor her.
I also was quite good at long distance running even with dystonia in one foot, in that it turns out. but as we had huge paddocks down the end of our road that's where i practised over hills. I never came first but was in the top 7 one year and got to go to crosscountry with other schools, again i ran over the hills training, and i beat kids i couldn't before. i got 13th out of all the schools that went, i was wrapt and still run today, although it's just around the kiwifruit orchard we own now. and am a bit slower but consistent.who knows i might get motivated and do a small 10km run , they have them in our area all the time. I did a 22.5 km walk in 1999 and was happy with finnishing. i even had to walk so much faster than i trained as everyone was so fast and i knocked about 15minutes off my time and didn't come last thank goodness.
I love tramping in the bush as it, ttakes your mind off this disorder and it's just so peaceful. and i lead rangers(scouts)
do cross stitch and ancestry, this is how i deal with dystonia is just keep very busy. other wise i find i start to dwell on things a bit and that's not good.
i'd love to know more about how you cope with things today.
writing and drinking are my very hardest things to do, but i do manage. and found ways to do these.
karen
- At 5:21pm on September 21, 2008,
Lene said… - Thank you for adding me to your friends..I am so happy to meet you. Hope we can have a great friendship...Good luck on your writing the articles. Sounds like a great thing to do!!! Lene
- At 12:37pm on September 18, 2008,
frekelz1 said… - i too am taking klonopin for my symptoms. talk to the doc about a baclophen pump. baclophen when i took it orally didnt help cause i had to take it in such high doses. but the baclophen pump goes directly into your spinal chord, so they can use much less and it goes directly to where its needed. i do drive, but not for long periods-the clonazipam makes me too drowsy. i think ive heard of your type of dystonia, but would like to know more about it. were there any family members with it, or are you like me- the only one and nobody knows what caused it. bye for now, suzanne
- At 12:28pm on September 18, 2008,
frekelz1 said…
- hi, took me 3 yrs to be diagnosed. what drs. did you go to? i was diagnosed at u of michigan. everyone before that said i was faking it. i am married for 2nd time now. have 2 beautiful sons, one from each, 14 and 17. i'm quite content with my life. i got botox injections in my vocal chords yesterday, really helps me speak. monday i had botox in my neck, for retro and torticollis dystonia-neck spasms-they seem to help a little, today i go to see about a baclophen pump. heard really good things about it for generalized dystonia. i seee a phys. ther., and talk w/ the person in charge of it all today, so hopefully we can make an appt for the simple surgery . gotta go now, would like to stay in touch with you. my name is suzanne, i live near seattle. my email is frekelz1@comcast.net ....
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