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Paul Winter
- Male
- Hailsham, East Sussex
- United Kingdom
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My 11-year old son has been diagnosed with Dystonia. His symptoms became apparent to me only a few months ago but he claims his symptoms have existed since 2nd grade (age 7), so I'm wondering if I should go back to see what vaccinations he received…
Thanks for passing it on Beka, I spoke with a few neurologists and they concur with what I thought in how Dystonia presentations occur. I did not think it looked like Dystonia but then again, I am not a physician, just someone who has done at lot of…
The Dystonia Flu-Shot Case
Published by Steven Novella under Neuroscience, Science and Medicine, Skepticism
Comments: 1
Robert E. Bartholomew is a social scientist who specializes in mass delusions. He describes them here, in an article he wrote for…
I contacted her also. No response. :P
Hi lene, I still can't make up my mind about having a flu shot. I'm really nervous about getting it as I don't want to chance my Dystonia getting worse. I'm already using a walker because of my many falls earlier this year. My MRI was ok accorrding…
Hi Lynn,
I know I appreciate you sharing your story and I am certain others will also. Its a shame that all this has happened to you because of the flu. Would you mind sharing further.......How old are you when this happened. How long ago was this?…
Hello. A seasonal flu shot changed my life. One week to the day of the flu shot I woke up and couldn't walk or use my arms. My whole body was in pain. Like inflammed with arthritis. My feet were on fire. My ankles were swollen. I went to the doctor.…
Go to the site www.tardivedyskinesia.com and send an email to a fella named " Chase ", he runs their awareness program and may be of help to you.
Site is specific to Reglan use.
beka
Hi Lene -
The vaccine for H1N1 is being contested in Federal court thus the vaccine is on HOLD
Yeah for nurses - for asking about choice...
beka
Hi toots,
Nice to hear from you. Well, I am not getting the seasonal or H1N1 vaccines. However, if you normally get it perhaps you should continue. It's all a matter of choice and how you educate yourself on this subject. Plenty of info..out in the…
Hi Paul,
I too can walk backwards a lot better then I can walk forward when my legs become dystonic. My thought on this is that I am using different muscles then those that are dystonic.
Also just wanted to mention that the story of this woman was…
They are calling her crazy in front of millions. These people are truly 'gonfle' like the french would say! It's beyond reason. Now is a good time for us all to stand up and say collectively that we won't take shoddy medical care anymore!
Can you i…
Take a look at this video - on Television with Deborah Norville in the USA :
http://www.insideedition.com/news.aspx?storyId=3525
Some proof possibly ?
beka
I felt the same way Paul. She was healthy one day and then boom sick.... I think I heard the vaccines that were made cost the pharmaceutical companies billions dollars so of course they want you to get it and pay. I know several people on this site…
Paul, I'm sorry to hear you're having such struggles with a diagnosis. I'm new to this dystonia thing, recently diagnosed. I've had symptoms for 9 years, so I can relate mildy to your frustration. I'm lucky in that no doctor has labeled mine as bein…
Yep, I understand how frustrating the diagnostic journey can be... I also have quite a few autonomic "issues", but don't have the time or energy to look for links these days. Thankfully I do have a dystonia diagnosis, so I just go with that and am a…
Profile Information
- In the online health communities I participate in, I'm:
- not really sure where I fit yet
- The online health resource I contribute to most frequently is:
- http://www.youtube.com/kaazoom
- This site is:
- my blog
- More about me (my health interests and reasons for joining WEGO Health)
- I have developed a movement disorder that may be dystonia. I have been given a psychogenic diagnosis but I am not convinced. I want to learn more about dystonia.
Comment Wall (1 comment)
- At 12:01pm on September 11, 2009,
Sheridragonfly said… - Paul, I have a friend in Birmingham , England with dystonia
His wife might be available to tell you who they have seen..
If you want to send me private your email, I can put you in
contact with both of them..
Sheri in the USA
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