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Been gone for a while but 3 things:
Your doctor was surprised by the results. Something in my head says he should have not been surprised.
If he knew which 5 muscle groups were affecting you why could he not use Botox to denervate those? It seem...
Oral medication was horrible! Insurance comanies require that Dr's start there, but they were a nightmare for me! Botox was helpful with the pain for me, but did not help me with my mobility. Botox seems to work for a pretty high % of people. If i...
You may want to try botox again. I understand that it can effect you adversely, but it may have simply been an initial reaction. I would have taken three days of sickness for three to four months of good health. I also have numbness on the back of...
I did try both myobloc and A. They helped with the pain, but not the mobility. My Dr. was very careful and tested my nerves to see which were affecting me. I have dystonia in 5 different muslce. groups. For my selective denervation procedure they ...
I would think a lot before undergoing an irreversible procedure. If they get it wrong (wrong nerves, muscles, etc) you could get a lot worse and there is no going back. Have you tried chemica denervation such as Botox A or Myoboc? Uness you are lu...
Hello Rj, I was diagnosed with cervical dystonia 6 years ago and have had denervation surgery with a Mayo Clinic doctor in Rochester, MN. 5 years ago. Before I found him I had gone through 14 different doctors who did not know what to do with me w...
Dear RJ,
Wish i could help you, but have zero experience with your question. I do have a touch of CD and mostly essential Tremor that I am researching solutions for. Any knowledge that you would like to share that you have already learned about y...
Has anyone else with CD had denervation? It looks like I will be going through this procedure in April, but would like to hear from others who have experienced prior to my surgery. I want to know how it worked for you? Side effects? I asked the dr...
I can't answer a lot of your questions, but I can at least give you some insight into your neck pulling. I was diagnosed with spasmotic torticollis/cervical dystonia in Oct '07. Originally my head ticked. It started with light ticking and progress...
Comment Wall (1 comment)
- At 12:14am on April 24, 2009,
Jenn said…
- first to comment! yay me!
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- More about me (my health interests and reasons for joining WEGO Health)
- I was diagnosed with spasmotic torticollis in October of '07
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