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Alicia C. Staley
  • Female
  • Boston, MA
  • United States
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Dianne Rees and Alicia C. Staley are now friends
1 hour ago
Interestingly, many docs remain in favor of mammograms In a survey being conducted by Medscape, the question posed is: What will you tell patients in their 40s about getting a mammogram? So far, out of just over 1100 docs responding, over 60% are...
2 hours ago
12 hours ago
14 hours ago
Patients are people. Statistics are facts. The two can be blended well, but at the root of every medical issue is one central figure: the patient. Doctors don't become doctors so they can ignore patients, yet the system we've built here in the US...
yesterday
Alicia C. Staley added a discussion to the group Breast Cancer
The controversy surrounding breast cancer screenings, mammography, and breast self exams (BSE) is still going strong. Over the weekend, numerous articles were posted from both sides of the argument. There seems to a widening gap between those that...
yesterday
Alicia C. Staley added a blog post
The controversy surrounding breast cancer screenings, mammography, and breast self exams (BSE) is still going strong. Over the weekend, numerous articles were posted from both sides of the argument. There seems to a widening gap between those that...
yesterday
yesterday

Profile Information

In the online health communities I participate in, I'm:
a Match Maker (Connecting people)
Another place where I contribute is:
http://www.awesomecancersurvivor.com/
Which is:
my blog
I’m also on:
http://www.twitter.com/stales
It's:
my twitter
You can also find me at:
http://www.thestaleyfoundation.org/
This is:
my non-profit
More about me (my health interests and reasons for joining WEGO Health)
three time cancer survivor. Hodgkin's Disease and Breast Cancer (2).

My Cancer By the Numbers

I'm an engineer by education, so sometimes I think it's easier to explain my cancer experience by the numbers:

I've had Hodgkin's disease once, Breast Cancer twice. I was a 20 year old college sophomore, fighting my way through cancer for the 1st time. To diagnose the Hodgkin's, I had every major organ in my abdominal region biopsied, a section of my hip removed, my spleen removed, and for good measure, I let the doctors take out my appendix too. To treat the Hodgkin’s, I had 18 weeks of radiation and 9 rounds of chemo therapy. My chemo regime had 4 drugs. I still have 21 little blue radiation tattoos used to mark the radiation field on my body. I lost all my hair and lost a ton of weight. It took close to 3 years to battle through the Hodgkin’s.

At the age of 33, I was diagnosed with breast cancer for the first time. I had one lumpectomy and 5 intense days of Mammosite Radiation. For two years, I dealt with horrific side effects from “the anticancer drug” Tamoxifen – dry eyes, night sweats, bone pain, weight gain, migraines, insomnia, fevers… Sometimes, the cure is worse than the disease. In November 2007, I was diagnosed with breast cancer for a second time and I opted for major surgery - a double mastectomy. I had my thyroid removed during that surgery too. In total, I've had 3 separate courses of radiation, 1 course of chemo, 8 major surgeries, and 1 bone marrow biopsy. Whew…

I'm walking proof that super glue and duct tape works wonders.
But in case you want to know... I can still hit a golf ball 250 yards on a good day... bad day, maybe 235.

Alicia C. Staley's Blog

Alicia C. Staley

Mammograms - Part II

The controversy surrounding breast cancer screenings, mammography, and breast self exams (BSE) is still going strong. Over the weekend, numerous articles were posted from both sides of the argument. There seems to a widening gap between those that are "for" mammography and those "against" mammography starting at age 40.

I don't think it's that clear cut. Lost in the conversations about screening mammography is the fine line in almost all of the reports that state: "women with a familial histContinue

Posted on November 30, 2009 at 11:25am — 1 Comment

Alicia C. Staley

Breast Cancer Screening: Mammograms - Yes or No?!

Here we go again. I can barely keep up with all the cancer screening guidelines and recommendations flying around these days. On Tuesday, another breast cancer screening guideline was released by... “The US Preventive Services Task Force.” My first reaction to the story was…..wait, who's that?? I had to look up the USPSTF; I’d never heard of them.

Who is the USPSTF?

The US Preventive Services Task Force is a division in… Continue

Posted on November 21, 2009 at 4:00pm — 3 Comments

Alicia C. Staley

Are we winning the War on Cancer?

As a cancer survivor, I'm surprised at the number of times people ask, "Are we winning the war on Cancer?"
Advances made in cancer research and treatments are making a difference, but I still think there's a long way to go. It's not a yes or no question and unfortunately most people immediately assume failure when the answer isn't a definitive "YES." I know we're making great strides in the war on cancer - I'm living proof.

In a recent report by US News & World Report, it seem… Continue

Posted on November 15, 2009 at 9:30pm — 1 Comment

Comment Wall (14 comments)

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At 10:36pm on November 30, 2009, dk said…
Good to meet you, Alicia! Thank you for the invitation. - DK
At 4:41pm on November 24, 2009, Elina N said…
Thanks Alicia!
At 7:34pm on November 15, 2009, paindfoot said…
Hi glad to add you!
At 1:04pm on November 14, 2009, ColumbiaPhD said…
Thanks...
Almost three years since I had a Whipple procedure for pancreatic cancer, my latest oncologist report indicates that I am currently cancer free! Hopefully, that will continue to be the case.
At 3:49pm on November 13, 2009, Jim - medXcentral said…
Hey.. sorry for not replying to your comment earlier. Good to see you here. I'm doing well... just trying to keep up.
At 5:09pm on November 10, 2009, TWISTEDJAM said…
Thanks for knocking on my door !

I've read your page ... what a road you have walked on !
I'm trying to walk in my mom's shoes now ... trying to do the best that I can for her !
She was recently diagnosed with Pancreatic Cancer ( stage 4 ).
She's on her way to yet another bout with Chemo tomorrow ... 3 more to go ...
this has been the worst storm that my family and I have been going through !

You're a braveheart ! ... We're trying the best we can to be brave as well !

Thanks for being a friend

Grace
At 12:39pm on November 10, 2009, Jonnie said…
Thanks so much for the friend request! You are one heck of a survivor! I look forward to getting to know you better.

Jonnie
At 12:15pm on November 10, 2009, sisdailey said…
Hello Stales:
I welcome your friendship. I hope you are doing well. I am doing ok hanging in there by threads. See you around here on wego.
Sisdailely
At 12:16pm on November 6, 2009, Amy K said…
So happy to meet you! Thank you for the friend request and for joining the group Twitter for Health Activism. I look forward to getting to know you, connecting more here and on twitter!
At 5:15pm on September 14, 2009, Gradon Tripp said…
Hey Alicia!
 
 
 

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