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amanda
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amanda and Lisa Gualtieri are now friends
5 hours ago
I lost my best friend to brain cancer. For the 18 months she survived, I was her caregiver and was with her 24/7. I was with her through surgery, every doctor’s appointment, every MRI, every radiation treatment, every infusion, every PT/OT appoint...
yesterday
check out the sickle cell poem video i just uploaded--it's powerful. such great sound. it explains how it feels to have sickle cell disease.
yesterday
amanda added 3 videos
yesterday
A blog post by amanda was featured
As Health Activists, we sift through an array of health information from medical reports and news articles to message boards and tweets. And, personally, as I research more about a disease or health condition, sometimes it takes a personal account...
yesterday
Great topic Amanda! Thanks for posting this for discussion. I really feel that having a "face" or person associated with a disease or condition has certainly helped raise awareness and understanding. As a cancer survivor, I've always looked for ot...
yesterday
amanda added a discussion to the group Alzheimer's Disease
I just read Irene Zutell's moving blog post, "Alzheimer's: A Love Story." In the blog she recalls her husband's mother, a woman who already was suffering from obvious degenerative symptoms of Alz by the time Irene met her. Irene recalls her husban...
yesterday
amanda added a blog post
As Health Activists, we sift through an array of health information from medical reports and news articles to message boards and tweets. And, personally, as I research more about a disease or health condition, sometimes it takes a personal account...
yesterday

Profile Information

In the online health communities I participate in, I'm:
a Librarian (Passionate researcher)
The online health resource I contribute to most frequently is:
http://www.twitter.com/wegoamanda
This site is:
my twitter
More about me (my health interests and reasons for joining WEGO Health)
Hi I'm Amanda. I just graduated college this spring with a BFA in Creative Writing (my thesis was in poetry). Now that I'm not focusing my energy on writing poems (though, of course, poetry is still always on my mind) I'm doing a lot of writing here at WEGO Health. I do lots of health research and even more health-related thinking. All of the discussions here really fascinate me. Every day I learn something new.

When I'm not writing, I'm probably watching tv, downloading new music, reading blogs, or sleeping. I like pretending I can cook by mixing every spice in my cabinet in a frying pan and then putting food in it.

Comment Wall (30 comments)

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Join this Ning Network

At 12:22pm on November 11, 2009, Enzo Darrigo said…
thank You so much I've joined the group!
At 5:27pm on November 6, 2009, Amy K said…
Hi Amanda!
Thank you for joining the Twitter for Health Activism group! I look forward to making lost of great connections there and to learning from one another as well.
Hope you are having a great week and a great weekend ahead!
Amy
At 10:11pm on November 4, 2009, mona said…
hi,amanda.thank you.I like that the wego health is discussing problems people are suffering from.can you do me a favour i am looking for discussion related to physical disabilities or mental health.can you send me the links related to this?thank you for the welcome.
At 5:07pm on October 30, 2009, Tahoe said…
Thank you, Amanda! I am finding my way around. i did participate in the Restless Legs Syndrome insight session yesterday, too. I plan on starting my blog sosn. Are there enough hours in the day?
I am also a are give for my 82 yr old mom, and took care of my father until he died. he had Alzheimer's, Parkinson's, and was bipolar! Now that was a job. He is at peace now. Resources for care givers are so important. My main interest is sleep disorders, particularly RLS, and I moderate several online groups for it. I will be sending people this way shortly. I love the way this web site is set up! Thank you for the welcome, and I am sure we will be talking more very soon.
At 10:23pm on October 18, 2009, asburyparkangel said…
Hi Amanda!
feel free to visit my music site

www.indieheaven.com/artists/anitaferrer-asburyparkangel
and my art/portfolio sites on

www.impactfolios.com/anitaferrer
www.impactfolios.com/asburyparkangel

Be blessed & I hope to hear from you:)
At 2:18pm on September 30, 2009, TENA/DIAMOND said…
HI AMANADA. THANK YOU FOR BEING A FRIEND. IT MEANS A LOT. THIS IS ALL NEW TO ME ... HERE! YES I LOVE RESEARCHING AND I DO HAVE A SPECIAL INTEREST WITH ALZ. MY AUNT HAD IT PRIOR TO HER PASSING. PLUS I KNOW PPL IN GENERAL THAT HAVE IT OR THEY CARING FOR THEIR LOVE ONE.
IT IS A DIFFICULT DISEASE , TO SAY THE LEAST.
THANK YOU FOR ALL.

I DO BELIEVE AS YOU HAVE SAID , THAT WE HAVE MUCH IN COMMON HERE.

YOURS DEARLY;

TENA/DIAMOND
At 7:13pm on September 26, 2009, joehappy46 said…
Um..I know I don't have a picture up yet...but..how do I say this with tact...um...little fidgety here...are you single? :) There I said it, or asked it that is.
At 2:05pm on September 22, 2009, Disa said…
Hello Amanda,
How kind of you to welcome me to the new groups. I've been quite ill this summer and spent most of it in and out of hospitals. As a result, I've been absent from the site that offers me so much. I've missed the reading, learning and conversations.

Hopefully, I can get back in the groove from now on. I need the contacts and encouragement just as much as I love giving to others the same. May God Bless you and give you many more GOOD days than painful ones.

In Him,
Disa
At 10:42pm on September 21, 2009, redheadsupermodel said…
Thanks for the welcome Amanda! I love WEGO. It's a great site. Great community!
At 4:42pm on September 21, 2009, carissao said…
Hi Amanda,

Thanks so much for your note. While I joined WEGO Health a while back, I haven't really dug in, particularly with groups, until now. I appreciate the welcome and look forward to exchanging thoughts with you. Thanks for the follow on Twitter; I followed you back.

It was actually WEGO Health--or at least your newest team member, Gradon Tripp--that inspired that tweet about my Dad. I saw that you guys got all decked out in purple for World Alzheimer's Day and it quickly got me thinking. I had a few sad moments, yes, but I prefer to focus on the happy times and to be thankful that we can still enjoy some of those with my Dad, who is doing relatively well. I also decided to quickly mobilize. It's a really busy time for me and I didn't think I'd be able to swing the Memory Walk, but I'm realizing that it was the fundraising in a tough economy that was holding me back. Instead, I'm going to raise what I can and do my part, so I just quickly pulled together this page: http://memorywalk09.kintera.org/manh/carissao

I'll dive into the Alz discussions and look forward to being a more active member of the community. Thanks again for reaching out.

Best regards,
Carissa

Amanda's Blog

amanda

Shaping the face of your cause: Who holds the power?

As Health Activists, we sift through an array of health information from medical reports and news articles to message boards and tweets. And, personally, as I research more about a disease or health condition, sometimes it takes a personal account or opinion-piece to really communicate the weight of the condition to me. This concept of coming to understanding via someone's personal story made me think about the way we define specific health conditions and disease and what goes into creating aContinue

Posted on November 24, 2009 at 12:57pm — 2 Comments

amanda

Talking to a Child or Teen About Alzheimer's

Explaining things to children isn't always easy. Sometimes you have to sacrifice telling the whole story as you understand it, in favor of reaching an understanding with them. But, as you've probably experienced personally, children are extremely perceptive and honest about their feelings. When talking to children in your life about health, have you struggled? What techniques did you use that worked? How much detail did you share? What did you purposely leave out or "soften" when talking tContinue

Posted on November 23, 2009 at 12:42pm —

amanda

Tips for Alz Caregivers During the Holiday Season

As of next week, the holiday season will be in full swing. This time of year is a fun time but often very stressful for everyone. In fact, it seems like the planning, preparation, and organization involved take twice as long as the celebration time. And though I'm sure all of us would agree that the stress put in is worth the enjoyment that comes out, it's not always easy to juggle all the different pieces at once especially if you're already juggling health routines. If you're a caregive… Continue

Posted on November 20, 2009 at 1:30pm — 1 Comment

amanda

Genetic Counseling

Here on WEGO Health, we do our best to not only share what conversations are going on in our other health communities but we also share tips on how to encourage the best health practices in our communities. Some tips of encouragement are easy, tell others to: eat healthy, get lots of rest, listen to your body, ask your doctor questions, etc. In fact, it is pretty easy to encourage members in your online communities advice when it's been proven over and over. But how do you react when membersContinue

Posted on November 17, 2009 at 5:39pm —

amanda

Today is National Memory Screening Day, But Which Aspect of Alzheimer's Deserves Focus?

One part of National Alzheimer's Month is National Memory Screening day, a day dedicated to promoting early detection of the sort of memory problems that are precursors to Alzheimers or dementia. The screenings have been happening for the last six years because of the efforts of the AlzhContinue

Posted on November 17, 2009 at 12:30pm —

 
 
 

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