amanda's Discussions
Ways To Get Involved With New Health Causes This November!
1 Reply
Started this discussion. Last reply by Amy K Nov 13.
Results from the ACS 2009 Report of Cancer Screenings
Started Oct 22
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Twitter for Health Activ…
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Sickle Cell Disease
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Health Activists And Pub…
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amanda's Page
Latest Activity
Amanda - GREAT POST!
Wow - this is an incredible amount of information, but you've really called out the key points for all of us to think about: Can Engaged Patients be HEALTHIER patients?! I think you've clearly outlined how engaged patients can b…
Amanda, I didn't think it was possible to crystallize Jane Sarasohn-Khan's amazing work in one post, but you've done a hell of a job of it. Jane's among the true leaders of the Health 2.0 movement, an advisor to many, and an advocate for all of us t…
I'll gladly add my two cents to the thoughtful posts here. As a healthcare advocate, I've spent years of my life creating awareness for disease categories, rallying around healthcare issues and supporting causes that generate positive change in heal…
In the past we've discussed the importance of patient self-advocacy and how to be your own health advocate. We've thought about whether the internet helps or hinders the doctor/patient relationship. And we've debated whether or not we would use virt…
A new study put out by The Journal of the American Medical Association sees a link between a person's levels of the hormone leptin and his or her Alzheimer's risk.
Leptin is a "protein hormone with important effects in regulating body weight, metab…
Fibromyalgia Webinar! at Online
December 16, 2009 from 8pm to 9pm
Please join The American Pain Foundation on December 16th at 8:00pm ET for a 1-hour, live, interactive webinar, “Maybe It’s Fibro?” with Daniel J. Clauw, MD Professor of Anesthesiology, Medicine (Rheumatology) and Psychiatry at the University of Mic…
Thanks for your comments, everyone. This is already an interesting discussion so far and I'm sure it will continue to evolve as we (and our social networks) evolve.
One of the most important things I've learned about communication in our online hea…
Profile Information
- In the online health communities I participate in, I'm:
- a Librarian (Passionate researcher)
- The online health resource I contribute to most frequently is:
- http://www.twitter.com/wegoamanda
- This site is:
- my twitter
- More about me (my health interests and reasons for joining WEGO Health)
- Hi I'm Amanda. I just graduated college this spring with a BFA in Creative Writing (my thesis was in poetry). Now that I'm not focusing my energy on writing poems (though, of course, poetry is still always on my mind) I'm doing a lot of writing here at WEGO Health. I do lots of health research and even more health-related thinking. All of the discussions here really fascinate me. Every day I learn something new.
When I'm not writing, I'm probably watching tv, downloading new music, reading blogs, or sleeping. I like pretending I can cook by mixing every spice in my cabinet in a frying pan and then putting food in it.
Comment Wall (30 comments)
- At 12:22pm on November 11, 2009,
Enzo Darrigo said…
- thank You so much I've joined the group!
- At 5:27pm on November 6, 2009,
Amy K said… - Hi Amanda!
Thank you for joining the Twitter for Health Activism group! I look forward to making lost of great connections there and to learning from one another as well.
Hope you are having a great week and a great weekend ahead!
Amy
- At 10:11pm on November 4, 2009,
mona said…
- hi,amanda.thank you.I like that the wego health is discussing problems people are suffering from.can you do me a favour i am looking for discussion related to physical disabilities or mental health.can you send me the links related to this?thank you for the welcome.
- At 5:07pm on October 30, 2009,
Tahoe said… - Thank you, Amanda! I am finding my way around. i did participate in the Restless Legs Syndrome insight session yesterday, too. I plan on starting my blog sosn. Are there enough hours in the day?
I am also a are give for my 82 yr old mom, and took care of my father until he died. he had Alzheimer's, Parkinson's, and was bipolar! Now that was a job. He is at peace now. Resources for care givers are so important. My main interest is sleep disorders, particularly RLS, and I moderate several online groups for it. I will be sending people this way shortly. I love the way this web site is set up! Thank you for the welcome, and I am sure we will be talking more very soon.
- At 10:23pm on October 18, 2009,
asburyparkangel said… - Hi Amanda!
feel free to visit my music site
www.indieheaven.com/artists/anitaferrer-asburyparkangel
and my art/portfolio sites on
www.impactfolios.com/anitaferrer
www.impactfolios.com/asburyparkangel
Be blessed & I hope to hear from you:)
- At 2:18pm on September 30, 2009,
TENA/DIAMOND said… - HI AMANADA. THANK YOU FOR BEING A FRIEND. IT MEANS A LOT. THIS IS ALL NEW TO ME ... HERE! YES I LOVE RESEARCHING AND I DO HAVE A SPECIAL INTEREST WITH ALZ. MY AUNT HAD IT PRIOR TO HER PASSING. PLUS I KNOW PPL IN GENERAL THAT HAVE IT OR THEY CARING FOR THEIR LOVE ONE.
IT IS A DIFFICULT DISEASE , TO SAY THE LEAST.
THANK YOU FOR ALL.
I DO BELIEVE AS YOU HAVE SAID , THAT WE HAVE MUCH IN COMMON HERE.
YOURS DEARLY;
TENA/DIAMOND
- At 7:13pm on September 26, 2009,
joehappy46 said… - Um..I know I don't have a picture up yet...but..how do I say this with tact...um...little fidgety here...are you single? :) There I said it, or asked it that is.
- At 2:05pm on September 22, 2009,
Disa said… - Hello Amanda,
How kind of you to welcome me to the new groups. I've been quite ill this summer and spent most of it in and out of hospitals. As a result, I've been absent from the site that offers me so much. I've missed the reading, learning and conversations.
Hopefully, I can get back in the groove from now on. I need the contacts and encouragement just as much as I love giving to others the same. May God Bless you and give you many more GOOD days than painful ones.
In Him,
Disa
- At 10:42pm on September 21, 2009,
redheadsupermodel said… - Thanks for the welcome Amanda! I love WEGO. It's a great site. Great community!
- At 4:42pm on September 21, 2009,
carissao said…
- Hi Amanda,
Thanks so much for your note. While I joined WEGO Health a while back, I haven't really dug in, particularly with groups, until now. I appreciate the welcome and look forward to exchanging thoughts with you. Thanks for the follow on Twitter; I followed you back.
It was actually WEGO Health--or at least your newest team member, Gradon Tripp--that inspired that tweet about my Dad. I saw that you guys got all decked out in purple for World Alzheimer's Day and it quickly got me thinking. I had a few sad moments, yes, but I prefer to focus on the happy times and to be thankful that we can still enjoy some of those with my Dad, who is doing relatively well. I also decided to quickly mobilize. It's a really busy time for me and I didn't think I'd be able to swing the Memory Walk, but I'm realizing that it was the fundraising in a tough economy that was holding me back. Instead, I'm going to raise what I can and do my part, so I just quickly pulled together this page: http://memorywalk09.kintera.org/manh/carissao
I'll dive into the Alz discussions and look forward to being a more active member of the community. Thanks again for reaching out.
Best regards,
Carissa
amanda's Videos
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Sickle Cell Fundraiser Video
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The Impact of Blood Donation
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Amanda's Blog
Patients, Healthcare, & Technology: Where Will You Be in the Future?
In the past we've discussed the importance of patient self-advocacy and how to be your own health advocate. We've thought about whether the internet helps or hinders the doctor/patient relationship. And we've debated whether or not we would… Continue
Posted on December 22, 2009 at 3:30pm — 2 Comments
Is Alzheimer's Prevention "the Ultimate Cure?"
In actress Kate Mulgrew's recent op-ed on CNN, she speaks up about Alzheimer's and the importance of prevention.
Mulgrew watched her mother "disappear, her features slowly masked with blankness, her supple body rigid and wooden, her absolute vividness obliterated by the heavy fog of her disease."
After sharing the few Alzheimer's statistics that so many of us know by heart by now (there is… Continue
Mulgrew watched her mother "disappear, her features slowly masked with blankness, her supple body rigid and wooden, her absolute vividness obliterated by the heavy fog of her disease."
After sharing the few Alzheimer's statistics that so many of us know by heart by now (there is… Continue
Posted on December 12, 2009 at 2:30pm —
Talking about Mental Health & Compulsive Behaviors
It seems to me that mental health, and compulsive behavior in particular, is receiving more attention in the media by the day. And I can't help but wonder why this is. I hope it is coming into focus because people are beginning to feel more comfortable, speaking up, banding together, and having dialogue about it. I wonder if the attention is coming from a schadenfreude: are we simply fascinated by others' oddities an… Continue
Posted on December 11, 2009 at 3:30pm —
Communicating in Different Online Arenas: Does Your Voice Change?
Sometimes there is tangible dissonance when we have discussions about health or illness in our online communities. Because people are so different, they bring different experiences and often speak in slightly varied language. This is what often makes online dialogue so wonderful—everyone brings something unique to the table.
But for the sake of smooth, effective communication, I wonder, as a Health Activist, how exactly do you speak to encourage others to speak about symptoms and trea… Continue
But for the sake of smooth, effective communication, I wonder, as a Health Activist, how exactly do you speak to encourage others to speak about symptoms and trea… Continue
Posted on December 9, 2009 at 4:07pm — 4 Comments
Alzheimer's Patients with Depression: More Common than You Think
Did you know that patients with Alzheimer's are more likely to have depression? Experts estimate that clinically significant depression occurs in about 20 to 40 percent of people with Alzheimer’s disease. Unlike regular depression that tends to affect women more often than men, Alzheimer's depression affects both men and women equally. Unfortunately it is quite difficult to detect and identify depression in Alzheimer's patients as symptoms often overlap and fluctuate. Dementia ofte… Continue
Posted on December 8, 2009 at 4:00pm —
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