bkaren46's Page
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From: Karen Burnett
Date: 11-27-09
I would like to start by saying I am GRATEFUL for all the PRAYERS, SUPPORT, CARDS AND NOTES I have received from a lot of people at my church, and I would like to let everyone know how Blessed I feel. GOD has put…
Beka, I have started a journal, since I came home from the hospital. My pastor asked me to write a letter to church, because they all new how bad things were. So I wrote this letter, and my Pastor called me to say, I want you to read this letter at…
Have you decided to may be write out your recent experiences ? Seems to me - that it is very POWERFUL.
Sometimes seeing or looking at another perspective does help.. often it is very eye-opening..
beka
I would say to do educate your self, Knowledge is so important.
Find a specialists that deals with Dystonia.
This is such a great topic. I think when we discover other people or sites, that are talking about Dystonia. I think it is our responsibility to make sure they are well educated, and have the information they need to spread this awareness. This is j…
I would have to say that for me, attitude plays a big part in how Dystonia reacts. And what I mean by this, is when I am not in a good place emotionally, I no I feel the pain so much more, because during this time the pain is all I am focused on....…
I am not sure if I would call this shock like symptoms or what it is. The bone at the bottom of my scull, I get a very sharp pain that lasts about, maybe 10 seconds or so. And than it just goes away. And this only happens when Cervical Dystonia is a…
Good Morning Everyone, I have a facebook account. And recently I have re-connected with a lot of Family members, old Friends etc. On my facebook wall I posted Robin's video about Dystonia. THANK YOU ROBIN, "for sharing and creating this video," And…
Profile Information
- More about me (my health interests and reasons for joining WEGO Health)
- I am 47 yrs old, I have Mitochondrial Disease which is primarey to Spasmodic Torticollis/CD, Myoclonic Movements and seizures.
Comment Wall (3 comments)
- At 4:52pm on February 21, 2009,
Trudy said… - Hi Karen,
You've been on my mind and although I didn't have a comment to add to a post necessarily, I wanted to say hello.
If you would like, you are free to email me anytime at tmk1226@gmail.com
Take care,
Trudy
- At 1:37pm on October 1, 2008,
Lene said… - Karen- Welcome to Wego Health and to new dystonia friends. I enjoy reading all that goes on here but I myself cannot always participate due to my fatigue etc. I love to read it all though...Best of Luck and welcome once again Lene
- At 1:40am on September 17, 2008,
beka said…
- Karen- please email me directly via infoc4d@aol.com and I will review your med list.
Have the seizures been documented by an EEG ?
Why on so many meds ? You must feel fatigued right out of your mind with all these meds.
Email me directly.
beka
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