Vanessa_Rhinesmith's Comments

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At 10:35pm on November 7, 2009, Elaine said…: Thanks for the welcome Amy and Vanessa,

I found this group suggested by Amy, though the chronic pain group.

I have been severely ill since Aug 2008. Have dystonic and mycolonic movements. Wasted a year with Neuros. Until finally seeing other specialists at my request to my GP.
Have been given a dx of Colitis, Severe Vit D Deficiency and most
recently am waiting on a Fibro dx.

I see the Rheumatologist Dec 15. And he has said he's very likely going to give a dx of Fibro. I had looked into many conditions since Aug 08. I never considered Fibro and it was never suggested to me.
But as I am learning more about it, I am coming to recognize myself in the symptoms.

I have become very disabled. I currently use a wheel chair about 95% of the time to leave the house. For very short distances...eg from car to door....I use crutches.
I was having non stop pain all over my body. I couldn't get into my own bed. Or lift myself off of the couch.
But now I'm on long acting , long term pain meds and am feeling a lot better.

I was going to private physio while I was on a hospital waiting list. They said they were not equipped to deal with someone in my condition.
Now I go to the hospital 2 x a week until they can build up my strength. Then it will increase to 3 x.
The physio brings on the movement episodes. So my therapist is having me reassessed at the hospital.

I plan to work hard at gaining back some of my life. I've been told I'll always have to do physio to some degree. But as long as it gives me some hope, than I will do it.

Thanks again for the welcome. : )
Elaine

At 6:51pm on October 28, 2009, pamala mitchell said…: well hello and thank you it is a lot of thing to talk about on this web page

At 6:46pm on September 27, 2009, babii said…: Thanks Vanessa for the warm welcome

At 7:35pm on September 8, 2009, dindin said…: Hi Vanessa -

You're very welcome! It was as much a pleasure for me as I hope it was for the others.

I've been out of touch for several days and only just now got your note. I know a little bit about COCs and ovarian cysts, but want to do a little more homework before I comment. So I want to make sure you didn't feel ignored! And I'll dig up as much as I can.

Warmly,
dindin

At 8:06am on August 29, 2009, Finally_a_Mom said…: Hi, sure I'd love to host an event in my area. Keep me posted, ok?

At 8:11pm on August 21, 2009, shakeyamy said…: how do i join the dystonia grp?

At 3:18pm on August 12, 2009, tracy said…: HI THERE.i HAVE A DAUGHTER WHO IS 3 AND SHE IS SUSPECTED TO HAVE AUTISM.SHE WILL ONLY BE MILD IF SHE IS DIAGNOSED WHICH SHOULD BE EARLY SEPTEMBER.iVE DONE AS MUCH RESEARCH AS I CAN FIND BUT JUST WONDERING IF YOU KNOW OF ANY VIDEO WEBSITES I COULD LOOK AT TO COMPARE OTHER CHILDREN OF THIS AGE WITH AUTISM?

At 5:52pm on July 23, 2009, Elaine said…: HI
Thanks for the welcome Vanessa. I'm not sure how this group works...so I don't know where I should begin.
I've been ill for a year now. Briefly..... Began with movements, which are so severe they resemble a seizure. Vit D deficiency. Parathyroid is high. But calcium is normal. Today the Dr says red blood count is high. And I have a Vit B 12 deficiency.
Elaine

At 10:37am on June 29, 2009, twisted said…: thanks for the welcome vanessa. I didn't even know this existed. was introduced by a dystonia support group & have already learned something new. look forward to meeting new people.

At 8:32pm on June 19, 2009, kamelia said…: hello vanessa_Rhinesmith
thank you so much for the welcome message and your suggestions.

At 5:46pm on June 15, 2009, brentye said…: I will be going to the site now.

Thanks for the info.

At 12:47pm on June 15, 2009, Diabetes For Life said…: Thanks Vanessa, and thanks for the advice.

At 12:20pm on June 11, 2009, kleonard04 said…: I also saw the twitter post on birth control study and applied. That's a study that is perfect for me so hope i get picked for the study! I've been looking around and ABSOLUTELY LOVE this site!!

At 12:10pm on June 11, 2009, kleonard04 said…: Thanks for the warm welcome!! I happened to stumble across this site on google. I have a son with asthma and wanted to get all the info i can on it. I am fascinated by health and medicine and want to be the healthiest i can, so i think i have found a WONDERFUL place where i can find and give help!

At 11:26am on June 11, 2009, pradagirl said…: HI VANESSA, THIS WILL BE VERY INTERESTING

At 10:14am on June 11, 2009, Whaler said…: Hi Vanessa,

I joined because I am friends with Marie and I think it's just such an interesting website and I'd like to learn more and maybe contribute. I found myself being a sort of go to person about health questions on a messageboard I help moderate so this seemed like a logical next step! Thanks I'll make sure to ask you any questions I might have!

At 8:49am on June 3, 2009, Lisa Gualtieri said…: Thank you for the welcome and the suggestions.

My new course is at http://webstrategiesforhealth - perhaps you can work with me on a case study about WEGO Health?

At 9:02am on June 1, 2009, Monica J. Foster said…: Thanks...Marie msg'd me on Twitter and I found you here. Great site!

At 8:39am on May 30, 2009, Jenn C said…: Thanks for the info. I really appreciate the welcome too! I will check out the groups and other links that you sent me too.......Happy to meet you.
Much Peace always
Jenn

At 5:13pm on May 29, 2009, Steven Hogg said…: Hi Vanessa thank you for the welcome message.
Im happy i stumble upon this site. Im a martial artist, ive worked in natural products for several years and i suffer from diabeties,bi-polar, and problems with my tiroide so health is very important to me and i like sharing info with people like yourself.hoping to get to know you and others here better, have a great day.